Our vision

All people with haemophilia and haemoglobinopathies access care and treatment, wherever they live.

Striving for better access to care

The Novo Nordisk Haemophilia & Haemoglobinopathies Foundation (NNHF) is driven by its vision that all people with haemophilia and haemoglobinopathies access care and treatment, wherever they live.

Established in 2005 in Zurich, Switzerland, the NNHF is mainly funded by Novo Nordisk while also receiving donations from other organisations and private benefactors, 100% of which are allocated to projects.

The NNHF funds projects to build capacity for diagnosis and care, encouraging its partners to join forces for sustainable impact and systemic change. Together, we strive to empower people with haemophilia and haemoglobinopathies to raise awareness, advocate with a united voice and live full lives.

Impacting care. Together

 

About haemophilia and haemoglobinopathies

Around ten million people live with these inherited blood disorders, mainly in low- and middle-income countries. They can cause pain, anaemia, or joint issues. Early care improves lives.

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Our approach

Novo Nordisk Haemophilia & Haemoglobinopathies Foundation (NNHF) partners with local and international community members to make change a reality for people with and haemoglobinopathies, wherever they live.

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Our team

NNHF is overseen by its Foundation Council, ensuring transparency in its goals, activities, and structures are as transparent as possible.

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Focus areas

Our projects focus on three areas to achieve systemic change. This framework has proven comprehensive in creating lasting transformation.

  • Capacity building and infrastructure

    We strengthen infrastructure and train families, patient organisations, and healthcare professionals on-site or virtually.

  • Diagnosis and registry

    We improve diagnostic skills and facilities, build registry systems to manage patient population, and implement quality assurance processes.

  • Awareness and advocacy

    We equip the haemophilia and haemoglobinopathies community to raise awareness among the public and authorities to advocate for systemic change.

How is NNHF structured
and governed?

NNHF is a non-profit organisation. As a grant-making foundation, NNHF is an associated partner of SwissFoundations and aligns its governance standards with the principles and recommendations of the Swiss Foundation Code.

  • NNHF Council

    NNHF is governed by the Foundation Council. The Council comprises globally renowned experts in the field of haemophilia and haemoglobinopathies, alongside members from Novo Nordisk.

    NNHF Council members exercise their duty without remuneration except for the reimbursement of their expenses.

  • Operationally managed by the NNHF team

    The NNHF Management Team is responsible for the operational management of NNHF and supports its partners in delivering results-oriented projects.

    NNHF’s annual financial statements are audited and Swiss authorities inspect the foundation’s financial and liquidity planning along with its financial reporting to ensure that NNHF proceeds are spent in accordance with its objectives.

  • Our Council – rules and responsibilities

    The NNHF Council oversees the foundation’s goals, activities and structures in transparency and alignment with its purpose. The Council convenes at least twice a year and is the supervisory and main decision body of the NNHF to ensure proper handling and distribution of funds.

    The NNHF Council entrusts day-to-day management to NNHF Management Team.